Home > Going home from the neonatal unit > What support is available when you go home

Support from your family and friends

Family and friends can be an important source of support when you come home from the neonatal unit. Often, they may want to help but may not know what to say or how to approach the subject with you. There may be times when you do want someone to listen, or you may not be ready to talk about how you are feeling, and that is okay.

It might be helpful to think about what kind of support and help you might need when you come home. Sometimes, help with practical tasks can be more helpful than emotional support.

If you are feeling overwhelmed, you can ask family and friends to help with practical tasks, such as:

  • Cooking meals to put in the freezer for when you need them.
  • Helping with laundry or food shopping.
  • Helping with school or nursery pick-ups if you have other children.

When you get home, you may have family members and friends asking questions and wanting to know more about you and your baby’s health. It is natural for them to be interested, but this may feel quite overwhelming. You may want to ask one family member or friend who you trust to be the first point of contact. They can then be responsible for updating other family members or friends with any news or information. This can help to take any pressure off you.

You may also get support from faith leaders or community groups in your area.

Another place to find emotional and practical support is Bliss’s private Facebook group. This is for parents with a baby born premature or sick and is a space for you to discuss your journey with people who understand.

Join the Bliss Facebook support group

Connect with other families of babies born premature and sick in a friendly online community.
Join the community

The best advice I would give to other NICU parents is to seek out others who can understand.

Heather, mum to Teddy, born at 26 weeks

Support with your finances

Having a baby born premature or sick can have an impact on your finances. Going to and from hospital for regular follow-up appointments can be expensive and it may be more difficult to pay your bills. A social worker at the neonatal unit may be able to help with practical issues, such as advice on travel costs or finances.

We have more information about how having a premature or sick baby can affect your finances, and what support is available. If you are worried about finances, try our Finance Hub to find specific information and practical help.

If you are a single parent, looking after a premature or sick baby at home can be difficult. You may find it helpful to contact Gingerbread, a charity that supports single parent families.

If your baby is disabled or living with a health condition, you may be eligible for Disability Living Allowance (DLA) for children. For more information on this visit the gov.uk website.

Support from Bliss

Bliss offers support services for families. We have an email service that supports parents and families of premature and sick babies. You can email us at, [email protected] and we will get back to you.

Looking back on it, I think I would have benefited from speaking to someone at Bliss, even to know I was not the only new mum with a full-term baby in NICU.

Kelly, mum to Hazel, born at term

Don’t forget, Bliss is here for you on the unit and when you go home.